Nearly One Year On

It has been nearly one year since my last posting and since then I have faced another session of Chemoembolization and Radio Frequency Ablation. Both of these went well and at the moment there is no sign of my HCC and my liver function tests show an improvement back to the level before the HCC was discovered.

The biggest problem I have is that the Liver Unit is reluctant to restart my Hep C treatment in fact sometimes I get the feeling that they are treating it as something to ignore but I will not let them ignore it or forget it.

The last opd appointment I had saw me lose my temper a little because no one was really willing to answer my questions about my Hep C. I finally got them to tell me that for the next 18 months or so they will scan me every 3 months and if after this I am still clear of the HCC then they will consider me for a transplant (the only safe way of ensuring HCC is cured completely) and when they put me on the list to start the Hep C treatment again. Hopefully that will last longer than just one week.

I have been listening to the Radio 4 play taken from Blogs published on the Web hopefully enough people listened to it or they make a TV version of it to reach a larger audience so perhaps the country especially our so called representatives in the big house in London will then understand the feeling of complete loneliness and pain we the silent sufferers of Hep C have to endure.

I really must stop searching the web for information on the challenges I am facing because it is really depressing me and this in turn makes me feel really tired and I have even caught myself saying to people that I cant wait to end up in my wooden box as at least then I would feel better??