Sunday, July 30, 2006

Recovering from my first Week back at Work

I have just about survived my first week back at work.

The mornings are not so bad it is the afternoon that gets me and unless I have some activity to keep my brain active all I want to do is sleep.

The heat this week did not help matters and finding out about changes to working practice while I was on holiday and not being briefed on them made me angry and this led to a little depression.

Next week will see me attending the CT clinic for my 3rd of 8 scans and that should be fun as it is quite a late appointment so there is every chance emergency scans will need to be done delaying my appointment. If it did not cost me so much to travel before 09:00 I would happily plumb for a morning appointment but I just could not afford it every time. Still getting home should be fun.

Tuesday, July 25, 2006

Back to work??

Well that's my holiday over and done with and it's back to work for me. Within two days I have gone from feeling really good to tired listless and sick again.

The only good thing is the lovely weather we are having at the moment is lifting my spirit a little.

This time next week I will be on a train for the trip to London as my CT scan appointment is not until 16:15. It will be fun trying to get home afterwards but what I will probably do is find somewhere near to Victoria to have something to eat and catch a train some time around 19:00 when the rush should be over.

I do not care what my boss or customers think next tuesday will see me dress down ready for my trip in the afternoon.

Phones have started going daft again so I suppose I had better get back to work....

Friday, July 21, 2006

Another Day

Yet another day in my life has gone away and for once I feel good about it.

Yesterday I joined the Hep C forum found via other blog's on this site. I no longer feel quite so lonely and isolated.

I have come to the conclusion that there is no support group in our area so I think I had better do some research into starting one up as I now know that there are one or two people in this area with the same or similar challenges as myself. I may just use the forum to sound out this idea to others in the area and while I am feeling good use the opportunity to think about starting a group myself.

Working within Eastbourne Borough Council should give me the opportunity to look out some sort of meeting room for meetings etc hopefully at a good price.

If I could find somewhere centrally then it will be easy for people to find and get to like the Town Hall where it is possible to park in the evenings and is close to train and bus transport. Hmmmm just a thought that will need looking into when I return to work next week.

Thursday, July 20, 2006

A Very Hot July


Well it has been the hottest July for many years and boy I am glad to say that I am feeling well.

My last CT scan did not show any scaring from the HCC and my liver function has improved by almost 10% from before I was diagnosed with HCC.

I still suffer from depressed moments every now and then especially when I have people say how well I look and I must be getting better only to tell them that I still have a long road to travel before I can honestly say I am better.

Trying to explain that HCV lives in your blood quietly destroying you slowly but surely can be a real pain sometimes so I have made up a pack of literature taken from the web and other sources so when I have someone look at me with some disbelieve I can just allow them to read this and get a better understanding of what I am going through.

The X-Ray department and Kings College Hospital is arguing with the Liver Department at the moment because they want to reduce the number of scans I am having from quarterly to half yearly. The Liver dept wants to keep it at quarterly so if there is even a slightest chance of HCC returning then they want to know about it.

Currently I am on Holiday or at least the last few days of my two week holiday and in this time I have attended the funeral for one of my relatives and attended the Graduation of my niece. Most of the plans I had like sorting out my Home Office and redecorating it has gone west because it has been so warm this has sapped what little energy I had from the rest. Still it is better than last year when I kept on having time off work because of treatment which did leave me drained of all energy.

Well I will leave this for now and return when I have something to say.