Part of the wait is over

While I redesign my blog in preparation for take 2 of my treatment I thought I would update any reader to what is happening.

One evening I got home to be told by my father that I had received a couple of phone calls but he could not understand the person who called so said I would not be home until after 6:00pm.

The next day I got a phone call while I was at work and found that the person trying to contact me had been the HepC specialist nurse who was trying to arrange an appointment to review my understanding of what was to come as we had already gone through the normal introductions to the treatment the last time I tried to have treatment before my tumours appeared and stopped everything for nearly 18 months.

I have been approached by the British Liver Trust to review there new leaflet on Liver Cancer and as a patient now in remission I felt I could be of use. As a guide it is pretty good although they should mention in the treatment section that variations of the different treatments could be tried to help increase the life expectancies of those diagnosed with Liver Cancer.

Now I have been told that I am currently in remission and can start treatment I hope that the consultants etc keep an eye on my AFP levels and CT scans for any sign of new tumours appearing and I really hope they stay away until I have completed treatment.

Generally my mood is good mainly because some of the helpful if somewhat strange conversations I read and sometimes contribute to on the HepC forum.

Forever Waiting

As the weather changes to that of winter rain etc and the dark mornings arrive my depression levels are starting to climb (or should I say plummet).

It does not help matters that I am still waiting to hear from the Hepatic nurse specialist at King for my initial assesment of suitability for treatment.

At this rate I will have a new tumour appear and the whole vicious cycle will start again.

Changes or planned changes at work are not helping at all. We have just found out the company I am currently employed by has lost the contract with the people we currently support so come January we will have to get used to new management and there way of doing things.

The uncertainty of my current employment and the long wait for a slot to open up for treatment is giving me indigestion as well as depression.